Le vécu des proches

FAMIREA_APHP-57 - copie

Le vécu des proches de patients hospitalisés en réanimation 

Renet A, Souppart V, Denise T, Chubbere JJ, Pochard F, Azoulay E, Kentish-Barnes N. Negotiating Time and Spaces: Family Experience of Waiting in the Intensive Care Unit. Nurs Crit Care. 2026 May;31(3):e70451. doi: 10.1111/nicc.70451. Erratum in: Nurs Crit Care. 2026 Jul;31(4):e70574. doi: 10.1111/nicc.70574. PMID: 41841458.

Kentish-Barnes N, Cohen-Solal Z, Souppart V et al. Being Convinced and Taking Responsibility: A Qualitative Study of Family Members’ Experience of Organ Donation Decision and Bereavement After Brain Death. Crit Care Med. 2019 Apr;47(4):526-534. doi: 10.1097/CCM.0000000000003616. PMID: 30608283.

Kentish-Barnes N, Siminoff LA, Walker W et al. A narrative review of family members’ experience of organ donation request after brain death in the critical care setting. Intensive Care Med. 2019 Mar;45(3):331-342. doi: 10.1007/s00134-019-05575-4. Epub 2019 Mar 6. PMID: 30840119.

Kentish-Barnes N, Chevret S, Cheisson G et al. Grief Symptoms in Relatives Who Experienced Organ Donation Requests in the ICU. Am J Respir Crit Care Med. 2018 Sep 15;198(6):751-758. doi: 10.1164/rccm.201709-1899OC. PMID: 29553799.

Kentish-Barnes N, Seegers V, Legriel S et al. CAESAR: a new tool to assess relatives’ experience of dying and death in the ICU. Intensive Care Med. 2016 Jun;42(6):995-1002. doi: 10.1007/s00134-016-4260-4. Epub 2016 Mar 7. PMID: 26951427.

Lemiale V, Kentish-Barnes N, Chaize M et al. Health-related quality of life in family members of intensive care unit patients. J Palliat Med. 2010 Sep;13(9):1131-7. doi: 10.1089/jpm.2010.0109. PMID: 20836638.

Kentish-Barnes N, Lemiale V, Chaize M et al. Assessing burden in families of critical care patients. Crit Care Med. 2009 Oct;37(10 Suppl):S448-56. doi: 10.1097/CCM.0b013e3181b6e145. PMID: 20046134.

Ciroldi M, Cariou A, Adrie C et al. Ability of family members to predict patient’s consent to critical care research. Intensive Care Med. 2007 May;33(5):807-813. doi: 10.1007/s00134-007-0582-6. Epub 2007 Mar 15. PMID: 17361388.

Azoulay E, Pochard F, Chevret S et al; FAMIREA Study Group. Half the family members of intensive care unit patients do not want to share in the decision-making process: a study in 78 French intensive care units. Crit Care Med. 2004 Sep;32(9):1832-8. doi: 10.1097/01.ccm.0000139693.88931.59. PMID: 15343009.

Pochard F, Azoulay E, Chevret S et al; French FAMIREA Group. Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision-making capacity. Crit Care Med. 2001 Oct;29(10):1893-7. doi: 10.1097/00003246-200110000-00007. PMID: 11588447.

Azoulay E, Pochard F, Chevret S et al; French FAMIREA Group. Meeting the needs of intensive care unit patient families: a multicenter study. Am J Respir Crit Care Med. 2001 Jan;163(1):135-9. doi: 10.1164/ajrccm.163.1.2005117. PMID: 11208638.

Azoulay E, Chevret S, Leleu G et al. Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med. 2000 Aug;28(8):3044-9. doi: 10.1097/00003246-200008000-00061. PMID: 10966293.

Symptômes post-réanimation des proches

Kentish-Barnes N, Denise T, Renet A, Reignier J, Souppart V, Etain B, Pochard F, Azoulay E. « It was torture for him, and it was torture for us to see him like that »: understanding multiple ICU-related triggers of family PTSD symptoms-a qualitative thematic study. Intensive Care Med. 2026 Jul;52(7):1458-1471. doi: 10.1007/s00134-026-08504-4. Epub 2026 Jun 10. PMID: 42268369.

Azoulay E, Pochard F, Kentish-Barnes N. HILLY, ou la blessure silencieuse des familles de patients en réanimation [HILLY: The silent injury experienced by families of intensive care patients]. Rev Prat. 2026 Apr;76(4):371-375. French. PMID: 42083855.

Azoulay É, Pochard F, Nelson J, Herridge M, Jaber S, Kentish-Barnes N. Health care-associated family mental injury. Am J Respir Crit Care Med. 2026 Apr 1;212(4):718-720. doi: 10.1164/rccm.202501-0313VP. PMID: 41072432.

Dupont T, Duchesnay E, Pochard F, Kentish-Barnes N, Azoulay E. Predicting post-traumatic stress disorder in relatives of critically ill patients. Curr Opin Crit Care. 2025 Aug 7. doi: 10.1097/MCC.0000000000001309. Epub ahead of print. PMID: 40767770.

Dupont T, Kentish-Barnes N, Pochard F, Duchesnay E, Azoulay E. Prediction of post-traumatic stress disorder in family members of ICU patients: a machine learning approach. Intensive Care Med. 2024 Jan;50(1):114-124. doi: 10.1007/s00134-023-07288-1. Epub 2023 Dec 19. PMID: 38112774.

Azoulay E, Resche-Rigon M, Megarbane B, et al. Association of COVID-19 Acute Respiratory Distress Syndrome With Symptoms of Posttraumatic Stress Disorder in Family Members After ICU Discharge. JAMA. 2022;327(11):1042–1050. doi:10.1001/jama.2022.2017

Kentish-Barnes N, Cohen-Solal Z, Morin L et al. Lived Experiences of Family Members of Patients With Severe COVID-19 Who Died in Intensive Care Units in France. JAMA Netw Open. 2021 Jun 1;4(6):e2113355. doi: 10.1001/jamanetworkopen.2021.13355. PMID: 34152418; PMCID: PMC8218069.

Laurent A, Reignier J, Le Gouge A et al. « You helped me keep my head above water »-experience of bereavement research after loss of a loved one in the ICU: insights from the ARREVE study. Intensive Care Med. 2019 Sep;45(9):1252-1261. doi: 10.1007/s00134-019-05722-x. Epub 2019 Aug 12. PMID: 31407041.

Kentish-Barnes N, Chaize M, Seegers V et al. Complicated grief after death of a relative in the intensive care unit. Eur Respir J. 2015 May;45(5):1341-52. doi: 10.1183/09031936.00160014. Epub 2015 Jan 22. PMID: 25614168.

 

 

Accompagnement des proches dans les services de réanimation

Azoulay É, Kentish-Barnes N, Boulanger C, Mistraletti G, van Mol M, Heras-La Calle G, Estenssoro E, van Heerden PV, Delgado MM, Perner A, Arabi YM, Myatra SN, Laake JH, De Waele JJ, Darmon M, Cecconi M. Family centeredness of care: a cross-sectional study in intensive care units part of the European society of intensive care medicine. Ann Intensive Care. 2024 May 21;14(1):77. doi: 10.1186/s13613-024-01307-0. PMID: 38771395; PMCID: PMC11109056.

Kentish-Barnes N, Azoulay E, Reignier J, Cariou A, Lafarge A, Huet O, Gargadennec T, Renault A, Souppart V, Clavier P, Dilosquer F, Leroux L, Légé S, Renet A, Brumback LC, Engelberg RA, Pochard F, Resche-Rigon M, Curtis JR. A randomised controlled trial of a nurse facilitator to promote communication for family members of critically ill patients. Intensive Care Med. 2024 May;50(5):712-724. doi: 10.1007/s00134-024-07390-y. Epub 2024 Apr 4. PMID: 38573403.

Renet A, Azoulay E, Reignier J, Cariou A, Renault A, Huet O, Pochard F, Engelberg RA, Kentish-Barnes N. « It’s all about setting the stage. » The nurse facilitator trial: perceived outcomes and implementation issues. A qualitative study among ICU clinicians and nurse facilitators. Intensive Care Med. 2024 Oct;50(10):1657-1667. doi: 10.1007/s00134-024-07589-z. Epub 2024 Aug 19. PMID: 39158706.

Kentish-Barnes N, Chevret S, Valade S et al. A three-step support strategy for relatives of patients dying in the intensive care unit: a cluster randomised trial. Lancet. 2022 Feb 12;399(10325):656-664. doi: 10.1016/S0140-6736(21)02176-0. Epub 2022 Jan 19. PMID: 35065008.

Azoulay É, Curtis JR, Kentish-Barnes N. Ten reasons for focusing on the care we provide for family members of critically ill patients with COVID-19. Intensive Care Med. 2021 Feb;47(2):230-233. doi: 10.1007/s00134-020-06319-5. Epub 2020 Nov 24. PMID: 33231733; PMCID: PMC7685190.

Azoulay E, Kentish-Barnes N. A 5-point strategy for improved connection with relatives of critically ill patients with COVID-19. Lancet Respir Med. 2020 Jun;8(6):e52. doi: 10.1016/S2213-2600(20)30223-X. Epub 2020 May 4. PMID: 32380024; PMCID: PMC7198186.

Kentish-Barnes N, Chevret S, Azoulay E. Guiding intensive care physicians’ communication and behavior towards bereaved relatives: study protocol for a cluster randomized controlled trial (COSMIC-EOL). Trials. 2018 Dec 22;19(1):698. doi: 10.1186/s13063-018-3084-7. PMID: 30577862; PMCID: PMC6303988.

Azoulay E, Forel JM, Vinatier I et al. Questions to improve family-staff communication in the ICU: a randomized controlled trial. Intensive Care Med. 2018 Nov;44(11):1879-1887. doi: 10.1007/s00134-018-5423-2. Epub 2018 Oct 21. PMID: 30374690.

Kentish-Barnes N, Cohen-Solal Z, Souppart V et al. « It Was the Only Thing I Could Hold Onto, But… »: Receiving a Letter of Condolence After Loss of a Loved One in the ICU: A Qualitative Study of Bereaved Relatives’ Experience. Crit Care Med. 2017 Dec;45(12):1965-1971. doi: 10.1097/CCM.0000000000002687. PMID: 28857855.

Kentish-Barnes N, Chevret S, Champigneulle B et al; Famirea Study Group. Effect of a condolence letter on grief symptoms among relatives of patients who died in the ICU: a randomized clinical trial. Intensive Care Med. 2017 Apr;43(4):473-484. doi: 10.1007/s00134-016-4669-9. Epub 2017 Feb 14. PMID: 28197680.

Davidson JE, Aslakson RA, Long AC et al. Guidelines for Family-Centered Care in the Neonatal, Pediatric, and Adult ICU. Crit Care Med. 2017 Jan;45(1):103-128. doi: 10.1097/CCM.0000000000002169. PMID: 27984278.

Azoulay E, Kentish-Barnes N, Nelson JE. Communication With Family Caregivers in the Intensive Care Unit: Answers and Questions. JAMA. 2016 May 17;315(19):2075-7. doi: 10.1001/jama.2016.5637. PMID: 27187298.

 

Peigne V, Chaize M, Falissard B et al. Important questions asked by family members of intensive care unit patients. Crit Care Med. 2011 Jun;39(6):1365-71. doi: 10.1097/CCM.0b013e3182120b68. PMID: 21358395.

Lautrette A, Darmon M, Megarbane B et al. A communication strategy and brochure for relatives of patients dying in the ICU. N Engl J Med. 2007 Feb 1;356(5):469-78. doi: 10.1056/NEJMoa063446. Erratum in: N Engl J Med. 2007 Jul 12;357(2):203. PMID: 17267907.

Fassier T, Darmon M, Laplace C et al. One-day quantitative cross-sectional study of family information time in 90 intensive care units in France. Crit Care Med. 2007 Jan;35(1):177-83. doi: 10.1097/01.CCM.0000249834.26847.BE. PMID: 17079999. 

Azoulay E, Pochard F, Kentish-Barnes N et al; FAMIREA Study Group. Risk of post-traumatic stress symptoms in family members of intensive care unit patients. Am J Respir Crit Care Med. 2005 May 1;171(9):987-94. doi: 10.1164/rccm.200409-1295OC. Epub 2005 Jan 21. PMID: 15665319.

Pochard F, Darmon M, Fassier T et al; French FAMIREA study group. Symptoms of anxiety and depression in family members of intensive care unit patients before discharge or death. A prospective multicenter study. J Crit Care. 2005 Mar;20(1):90-6. doi: 10.1016/j.jcrc.2004.11.004. PMID: 16015522.

Azoulay E, Pochard F. Communication with family members of patients dying in the intensive care unit. Curr Opin Crit Care. 2003 Dec;9(6):545-50. doi: 10.1097/00075198-200312000-00014. PMID: 14639077.

Azoulay E, Pochard F. Meeting the needs of intensive care unit patients’ family members: beyond satisfaction. Crit Care Med. 2002 Sep;30(9):2171. doi: 10.1097/00003246-200209000-00053. PMID: 12352075.

Azoulay E, Pochard F, Chevret S et al. Impact of a family information leaflet on effectiveness of information provided to family members of intensive care unit patients: a multicenter, prospective, randomized, controlled trial. Am J Respir Crit Care Med. 2002 Feb 15;165(4):438-42. doi: 10.1164/ajrccm.165.4.200108-006oc. PMID: 11850333.